ponedeljek, 23. april 2018

Contingencies of resettlements (Macedonia) - methods and reception





Little is known of methods used in the first resettlement action (Kriva Palanka). In the first wave of resettlements for Demir Kapija, the methods of assessment and training of the residents that would eventually leave were extensively used. The other part of work was to create day centres, recruit the fosterers and instruct them. In the second wave, the process was planned as by the book and there was more accent on getting the institution as whole involved, more assessment was done on the institution and its resources (staff, amenities). The future carers had a brief but intensive and up to date training. However, it seems something went wrong in the relationships and not everything went the way it was planned and created a schism between the institution, its staff and the external actors who were instrumental in the resettlement process. It looks like the crew responsible for the project got focus on the outcomes and did not let the process stop the resettlements.

Personal plans were used in that period, but not as a basic instrument of resettlement (as a resettlement plan), since the residents were moving collectively into group homes. They were used more to foster users’ perspective, to get the idea of likes and dislikes of the residents exiting the institution. Although the staff of new services has this knowledge, they do not use it as the main tool of the service delivery. We can assume that this is partly the case also because there is not a perspective of move from the group homes on.

That something was lost in terms of the methods during the process is also the impression received in Demir Kapija. Through the years, they have been exposed through various projects, to many methods and some have been developed on their own (cf.: teamwork in the annexe). However, the context of their work and the depressive attitude of resisting change has made staff less motivated to use those trainings and new methods of working. Nevertheless, the methods of ‘intensive interaction’ and personal planning introduced to Demir Kapija staff in recent months have been seen as important contribution to their work, tools of value in the future resettlements and were welcome. These two ways of working seem to be of great importance, since they provide tools of understanding and breaching the gap between the residents who are not able to express themselves in conventional manner and give the staff the vision of what they want, like and wish in their lives. Coupled with training in teamwork, organising new community services, risk taking and assessment methods and change management they would form a necessary pack that the staff of transforming institution should possess.

The reception of the community of the resettled residents was mainly good and welcoming. The interviews with various community members confirm this. They know that conditions in the institutions are bad, but often do not see the alternative since (as noted above) they believe that institutions are as a place where people are treated, cared for – “they have a doctor there (which in fact they have not) and can be given medicaments; they are better off in there than staying home”. Some more informed members of community have heard of the deinstitutionalisation or when they hear what it is about, they approve it and see its merit. A special educator in one of the day centres supports the process, but warns about the conditions that need to be fulfilled, i.e. that it is done completely and that all the residents have a chance for better life.

It looks like ex-residents were as a rule well received and that there was not much of the resistance against the new comers. The NIMBY (not in my back yard) effect was recorded, paradoxically, only in an attempt of the infants’ home to establish a group home for the children that out-grew the requirements of the institution (surpassed the age of three). The group home was planned to be in a ‘well-to-do’ suburban community and parents in the area petitioned against it – not wanting that their children would be in the same kindergarten with Gipsies. The discrimination and racism presented was, in this case, not against the disability but against Roma (children).

The protagonist of the second wave resettlement emphasise that it was more difficult for the users to be accepted by the neighbours and to access other services in Skopje rather than in Volkovo, which is a small community (settlement or village) close to Skopje, the people are friendlier and are accepting the users much easily. Here, the development of the users is much easier because after the day activities and according to personal wishes they go to the city for leisure and entertainment, visiting cultural and sports events etc. In Negotino, which is also a smaller local community, people are more tolerant and willing to provide help; the users have more opportunities to use local services and resources.  This opinion is partly true, but partly can be seen as a rationalisation of the fact that they had to move out of Skopje for economic reasons and we should be careful not to have over idyllic expectations regarding future resettlements. There are good and bad sides of different environments. While there is more of a community spirit and less anomia in smaller towns and communities, the city folks are more tolerant and there are more opportunities (e.g. for service support) in the cities.

The strong value and the norm of hospitality, generousness and compassion in Macedonian culture definitely helps the reception of people who return from the institutions. The part of the culture that is an obstacle to inclusion is the feeling of uneasiness and shame of such people to belong to one’s family. 


Claimer: This blog is intended as a part of Situation Analysis and Assessment/ Evaluation Report of Implementation of National Strategy on Deinstitutionalisation 2008–2018, which will be soon presented to the public within the EU framework project Technical assistance support for the deinstitutionalization process in social sector. For this blog, Vlado Krstovski is considered to be co-author.

 


četrtek, 19. april 2018

Biti doma in ostati dejaven in družaben

V temle blogu objavljam povzetek in diapozitive današnjega predavanja, ki sem ga imel na posvetu 'Vsak se strara po svoje', ob 50. obletnici VDC Tončke Hočevar. Diapozitivi na sredi so izvleček iz ustreznih poglavij v knjigi "Flaker, V., Mali, J., Kodele, T., Grebenc, V., Škerjanc, J., Urek, M. (2008), Dolgotrajna oskrba: Očrt potreb in odgovorov nanje. Ljubljana: Fakulteta za socialno delo.". Posvet je bil izredno prijeten dogodek in nekaterim je bil moj prispevek všeč. Tisti, ki jim ni bil všeč, pa mi tega niso povedali. 

Povzetek

Ljudje z nalepko motnje v duševnem razvoju se srečujejo z enakimi izzivi staranja kot vsi, ki se staramo, le da imajo pri tem še vrsto težav, ki izhajajo iz njihove posebne družbene vloge, nalepke in siceršnje izključenosti iz družbenega življenja. Ko načrtujemo prehod iz institucionalne v skupnostno oskrbo, so med glavnimi vprašanji, na katere moramo odgovoriti, kje bodo ljudje živeli, kaj bodo delali in s kom se bodo družili. Stanovanje (dom), dejavnost in stiki so tudi glavna sredstva, s katerimi oblikujemo svojo identiteto. Stanovanje ni zgolj fizični prostor in streha nad glavo, je tudi prostor, kamor povabimo obiske, spravimo svoje stvari in spominke. Dom definiramo kot glavno oporišče svoje suverenosti. Delo, dejavnost nam omogoča dohodke, pa tudi da začutimo sebe, hkrati pa nam daje družbeni status, pridobi tovariše in nam organizira čas. Stiki so naše ogledalo, vir materialnih in čustvenih, pa tudi etičnih izmenjav, vir podpore in osmišljanja naše eksistence. Tako stari ljudje kot ljudje, ki jih imamo za 'intelektualno ovirane', so pogosto prav na teh področjih prikrajšani. Pri načrtovanju novih odgovorov moramo zato posvetiti pozornost tem vidikom življenja, omogočiti ljudem, da suvereno obvladajo svoj neposredni življenjskih prostor – ohranijo oz. ustvarijo dom, da kljub izključenosti iz zaposlovanja ostanejo aktivni in da nadomestijo sesuvanje socialne mreže. Ob razvoju storitev po osebni meri (osebnega načrtovanja, asistence in oskrbe na domu) moramo izumljati tudi organizacijske oblike, ki bodo omogočale usklajeno in učinkovito (tudi elektronsko) podporo na domu, ne le aktivnost temveč tudi koristnost in produktivnost in ustvarjanje pomembnih vezi med ljudmi. S tem pa tudi večjo solidarnost in tovarištvo med ljudmi nasploh.